“The scientist in me knows that we don’t thrive alone.
When we’re born we need human contact. Throughout our life we know from science
and from our own emotions that we need human contact to thrive. In dying we can
no more be alone that we can at birth,” says Melissa McRae, a native of Santa
Barbara who studied at both UCSB and UCLA.
She currently works at St. John’s as a Surgery
Administrative Coordinator, but also volunteers for the No One Dies Alone
(NODA) program at St. John’s Health Center.
“I’m not religious but I am spiritual,” she continues.
“It makes me feel good to be able to be with the dying person, to touch them,
to hold their hand, to make human contact. I want to be there for people. It
means a lot to me.”
NODA was the idea of a Critical Care Nurse named Sandra
Clarke wrote, “There seems to be an unwritten universal
protocol (among nurses) for the patient who is dying without the presence of friends or family. One’s other patients’
care will be taken over by nearby nurses. Rituals of passing are acted out: I’ve
seen nurses quietly singing, holding the hand of the dying, and, in all other
manners of behavior, showing care and respect while an individual passes on to
death. Nurses know the awe of being present at the birth or the death of
another human. I believe awe and privilege is an innate human response at these
times – the very essence of humanity.”
That unwritten protocol became a formal program now
known as “No One Dies Alone” and it was founded at Sacred Heart Medical Center
in Eugene Oregon in November of 2001. Hospitals and health centers across the
country have followed their lead. St. John’s began their NODA program in 2004.
Sister Maureen Craig, a person happily known to all who
work at St. John’s says St. John’s has a long tradition, rooted in the mission
of the hospital, for compassionate care.
“I am thankful for the volunteers carrying our
traditions forward,” Craig says. “Through the years our numbers have diminished
and work that was once done by the Sisters has now become part of the lives of
our volunteers. We love the fact that the loving care we so believe in is being
continued by the hundreds of volunteers at St. John’s and by the remarkable
volunteers of the No One Dies Alone program.”
Grenda Pearlman, Director of Volunteer Services at St.
John’s says the NODA program currently has about 25 volunteers.
“Each one attends orientation sessions and receives
training,” Pearlman says. “The current volunteers range in age from their early
20’s to their late 70’s. The requirement for being a NODA volunteer is an
interest in being advocates for the patient. These patients are on comfort care
and our goal at St. John’s is to see they have no physical pain and to offer
Pearlman says NODA volunteers are special people and it
is not something that everybody can or should do.
“But if it is something a person can do then it is not
only a gift to the patient it is also a gift to the volunteer,” she says.
For information about volunteering for the NODA program
of for any of the St. John’s programs, contact Grenda Pearlman at 310.829.8438
or email firstname.lastname@example.org.
Marge Gold is a NODA volunteer who provides care to
patients and who also helps the Director with program organization and
Gold says she has learned many things from being a NODA
“NODA has taught me to just be there in whatever way the
patient needs, to suspend judgment, and to come with no expectations about the
patient or the family,” she says. “I hope I always say and do whatever is
needed and am of help. It’s a profound experience and I’m grateful to be a
Like other volunteers for NODA, Nancy Cronig has a long
series of accomplished volunteer work on her resume.
Currently she is an actor in the Moot Court program at
UCLA, is part of the St. John’s Surgery Waiting Room Volunteer program, and a
Recounting her NODA experiences, Cronig says she came to
realize that even in a coma a person can hear her.
“I play music and sing to them,” Cronig says. “I hold
their hand. I wipe their brow and put ointment on their lips and do other
things to make them comfortable. I advocate for them when they can’t advocate
She says when she got called for her first patient she
didn’t know what to expect.
“I sat with her and held her hand and played music for
her,” she says. “I was so thankful to be able to pass on some of the help I
have gotten in my life to someone who was in need. It is a healing experience.”
From the beginning of St. John’s to now much has changed
in health care.
The work of being a physician and the physician’s
commitment to each patient is a value we agree to as a nation. One we all want
However the delivery of health care, cost of health
care, and availability of health care remains in the public, the political, and
the economic spotlight.
In addition medical technology has made great
advancements bringing great benefits but adding to the ethical questions that
have always been part of medicine.
A discussion of the forces shaping our national health
care is, and needs to be, ongoing. Throughout what can sometimes be a contentious debate, individual people
across the nation are using their time to volunteer in ways that support the
commitment to each individual patient.
NODA is one part of the answer to the ethical questions
of our time.
Copyright © 2011 by Santa Monica Mirror. All rights reserved.